I'm concerned, anyone hear from
@ETLS ?
It was a close call my brother. I was rushed back to the hospital, on oxygen, breathing was torturous.
I still had the damn fever. They kept blaming that on the tumor. Blood cultures urine cultures and everything they could think to culture all kept coming back negative.
They had me there for a while, it was a blur but I knew they were missing something. I get a discharge notice, they were once again going to turn me loose, still not any surgery to remove all my teeth for the chemo/radiation treatments.
I filed an immediate appeal and won.
I told them they had not cultured my sputum from my throat.
Bingo!
Staphylococcus Aureus.
This crap is no joke. It beat me down as I began to deal with defeating it. While waiting for the culture results, they put me in the surgery theater to deal with my teeth. My jaw was jacked open for the two hour procedure, did all the extractions, then sent me back to my hospital room.
I would much rather had my hands tied behind my back in the middle of a barroom brawl. I have been home now, I think for six or seven days now.
I am on a 5-4-2 schedule that has been mixed with a ton of sleep between the schedule.
I am on 5 single carton feedings, 4 medicated "swish and spit" stuff that is so nasty I almost vomit, and a twice daily pill crushed, dissolved, and put through my feeding tube.
I start at 8am and finish at 8pm. I have Home HealthCare to help, and thankfully, a good friend to fill in.
Today is the first time I feel like I'm moving up instead of sinking to the bitter depths. Today was productive, my first foray outside, and tomorrow I actually begin my cancer treatments.
My energy has been sapped. I'm down to 170 pounds. I have no muscle mass in my legs, or arms. A toothpick. But I feel great today.
Finally.
I have a suction machine next to me on my bed, ready to suction snot, spit, sputum at a moment's notice. It gets quite a workout daily. I have a nebulizer machine on the table next to my bed for breathing treatments. I have gone through 1000ml tof sterile water in 24 hours twice this week.
My mind is becoming sharp and focused again. That inner strength roaring back to life like smoldering coals with a nice steady breeze stoking them back to life.
Bob's picture was proudly posted to my refrigerator. I look at it and smile. Tomorrow 8:30 I will be at the oncology center for something, hopefully they cut some of this tumor out. I cannot relax my jaw, tumor and tongue keep it open one-half inch.
Tell Rich there's a Squirrel and keep him distracted. I'll see you all tomorrow afternoon.